The Lab FAIR Data Project is part of the I FAIR Programme “Enhancement of Independent Clinical Research and FAIR”, which aims to support independent clinical research conducted spontaneously by non-commercial promoters within the Regional Health System Institutions, promoting the adoption of FAIR Principles for research results that can be Findable, Accessible, Interoperable and Reusable.
CRS4 is one of the main creators of the I FAIR Programme and is in charge of its strategic design and implementation, together with Expert Patients’ Associations and the Universities of Cagliari and Sassari, with the coordination of the Biomedical Research Support Unit of Sardegna Ricerche.
Within the framework of the I FAIR Programme, CRS4 has contributed and continues to contribute to the dissemination of the importance of the application of the FAIR Principles among the scientific community on the territory, through dissemination, training and support initiatives towards a shared culture of management and valorisation of the data collected in the framework of research activities.
CRS4 has also set up the Regional Biomedical Research Registry, a tool designed to improve the quality, reusability and sustainability of clinical research. It is an infrastructure built according to the FAIR Principles and aimed at collecting a set of descriptive metadata related to independent clinical trials, in order to facilitate the sharing and reuse of the data collected and generated.
The Registry is in the process of being populated with metadata from the clinical trials identified during the FAIR I Calls, and is publicly accessible online at:
https://ifair.crs4.it
The I FAIR Programme was born in coherence with and implementation of the Smart Specialisation Strategy (S3) of the POR-FESR 2014-20 for the strategic area of Biomedicine, confirmed and extended in the S3 of the POR FESR 2021-27.
