The I FAIR Programme “Enhancement of Independent and FAIR Clinical Research” is an initiative promoted by Sardegna Ricerche to introduce the FAIR data Principles (Findable, Accessible, Interoperable and Reusable) in regional clinical research projects.
The Programme consists of two parts: the regional biomedical research registry and the I FAIR call. The registry will gather references to resources and data collected in independent clinical trials conducted in Sardinia. The call identifies an initial core of independent clinical studies to be indexed in the register and provides the studies with dual support, financial and technical-operational for study design (on bioethics, biostatistics and FAIR data).
In the framework of the IFAIR Program, CRS4 is responsible for the realization of the registry of biomedical research in Sardinia and for the support to the researchers of the selected studies for the introduction to the application of the FAIR Guiding Principles.
The I FAIR Programme “Enhancement of Independent and FAIR clinical research” is one of the actions promoted by Sardegna Ricerche within the themes identified by the S3 (Intelligent Specialisation Strategy of Sardinia) for the biomedicine sector and the development of the Biomed District, and is implemented in collaboration with the Department of Medical Sciences and Public Health of the University of Cagliari (Legal Medicine sector), the Department of Medical, Surgical and Experimental Sciences of the University of Sassari (Medical Statistics sector), and the Digital Health and Next Generation Sequencing Core groups of CRS4.<\/p>\n
I FAIR is funded with POR FESR Sardegna 2014 – 2020 funds.<\/p>\n","protected":false},"featured_media":0,"template":"","meta":{"_acf_changed":false},"gruppo":[123],"class_list":["post-14968","projects","type-projects","status-publish","hentry","gruppo-data-intensive-computing-en"],"acf":{"title":"Progetto complesso per la Biomedicina FAIR DATA","acronym":"FAIR DATA","project_uuid":"59b9ce85-9217-11eb-8341-506b8da9258c","start_date":"14\/03\/2019","end_date":"31\/12\/2022","funder":"Sardegna Ricerche ","partners":"\n
| Nome<\/th>\n | Nazione<\/th>\n | Ruolo<\/th>\n <\/tr>\n\n |
|---|---|---|
| Unit\u00e0 di supporto alla ricerca biomedica - Sardegna Ricerche<\/td>\n | Italy<\/td>\n | Coordinator<\/td>\n <\/tr>\n\n |
| Universit\u00e0\u00a0degli Studi di Sassari<\/a><\/td>\n | Italy<\/td>\n | Partner<\/td>\n <\/tr>\n\n |
| Universit\u00e0 degli Studi di Cagliari<\/a><\/td>\n | Italy<\/td>\n | Partner<\/td>\n <\/tr>\n<\/table>","proj_website":"","project_image_header":false,"project_status":"Completed","project_coordinator":[{"ID":10226,"post_author":"4","post_date":"2025-06-30 17:23:05","post_date_gmt":"2025-06-30 15:23:05","post_content":"Francesca coordinates the digital health research activities on the Visual and Data-intensive Computing Sector at CRS4 (prev. Research Programs Digital Health\/Healthcare Flows). Her research activity spans the opportunities and problems arising from the application of computer science to medicine, working on interoperability, traceability, telemedicine and modelling of data and processes in the clinical context. In her 20 years of research experience she has cultivated ongoing collaborations with public and private organisations, including research institutions, hospitals and industries operating in the health IT sector, with particular attention to the direct application of research results in clinical practice. She holds a Ph.D. in Innovation Sciences and Technologies from the University of Cagliari and a degree in Biomedical Engineering from the University of Genoa. Her present research interests are mainly focused on the modelling of biomedical data and processes, with a particular attention to interoperability and traceability, also in the perspective of the application of the FAIR Principles. In particular, she is currently working: on an integration profile about specimen tracking (SET profile), with the IHE PaLM Technical committee; on the modelling of genetic data through the openEHR formalism, with openEHR International; and a standard under development about provenance information in the biotechnology domain (Standard ISO 23494, ISO Technical Committee 276), with BBMRI-ERIC, the European research infrastructure for biobanking.","post_title":"Francesca Frexia","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"francesca-frexia","to_ping":"","pinged":"","post_modified":"2026-04-05 20:11:18","post_modified_gmt":"2026-04-05 18:11:18","post_content_filtered":"","post_parent":0,"guid":"https:\/\/www.crs4.it\/people\/francesca-frexia\/","menu_order":0,"post_type":"people","post_mime_type":"","comment_count":"0","filter":"raw"}],"team_members":[{"ID":9986,"post_author":"4","post_date":"2025-06-30 17:26:23","post_date_gmt":"2025-06-30 15:26:23","post_content":"Graduated in Electronic Engineering at the University of Cagliari in 2003, Alessandro Sulis successively took a II level Master in Information Technology, at the Center of Excellence CEFRIEL in Milan. He has a decade of experience in interoperability between clinical systems according to the main standards and best practices and actively collaborates with international reference organizations (IHE and HL7 International). In particular, since 2013 he has been Monitor at the IHE European Connectathon and since 2021 he has been Co-Chair of the Technical Committee of the IHE PaLM (Pathology and Laboratory Medicine) domain, where he is also the main editor of the SET Profile (Specimen Event Tracking), for sample traceability. His current research interests include the study and promotion of FAIR principles, in the context of projects related to FAIRification of data and metadata in the clinical domain.","post_title":"Alessandro Sulis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"alessandro-sulis","to_ping":"","pinged":"","post_modified":"2026-04-05 20:14:13","post_modified_gmt":"2026-04-05 18:14:13","post_content_filtered":"","post_parent":0,"guid":"https:\/\/www.crs4.it\/people\/alessandro-sulis\/","menu_order":0,"post_type":"people","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10291,"post_author":"4","post_date":"2025-06-30 17:24:26","post_date_gmt":"2025-06-30 15:24:26","post_content":"Since the degree in Computer Science from the Universit\u00e0 degli Studi di Cagliari in 2008, he deals with research and development in the area of Clinical Informatics and Biomedicine. He has worked since 2010 in the Digital Health group at CRS4, where he is involved in design and development of application focused on integration among clinical domains, telemedicine. In particular, in the context of telemedicine, he participated in the creation of a prototype for ultrasound teleconsultation. Regarding interoperability, he collaborated to the implementation of traceability systems for clinical processes, acquiring a deep knowledge of international standards and guidelines of the field, like HL7 and IHE. He is the main developer of HL7apy, an open-source Python package to handle HL7 v2 messages and he participated as Monitor to the IHE Connectathon in 2017, 2018 and 2020. More recently he has focused his work on data FAIRification concerning the sharing of data about rare diseases and the development of the biomedical research registry of the Region of Sardinia.","post_title":"Vittorio Meloni","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"vittorio-meloni","to_ping":"","pinged":"","post_modified":"2026-04-05 20:12:32","post_modified_gmt":"2026-04-05 18:12:32","post_content_filtered":"","post_parent":0,"guid":"https:\/\/www.crs4.it\/people\/vittorio-meloni\/","menu_order":0,"post_type":"people","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10285,"post_author":"4","post_date":"2025-06-30 17:24:17","post_date_gmt":"2025-06-30 15:24:17","post_content":"Cecilia Mascia got her master's degree in Biomedical Engineering in 2013 at the Polytechnic of Turin, with a thesis focused on the evaluation of a telemedicine system developed during an internship at the Digital Health group of the CRS4. In 2015 she collaborated with the Department of Mechanical, Chemical and Materials Engineering of the University of Cagliari in a research project on the analysis, modelling and re-engineering of processes related to the drug supply chain in a private hospital. She joined the DH group in 2014, mainly involved in clinical data modelling activities according to international specifications (openEHR, in particular, and HL7 CDA) for EHR interoperability purposes. She is currently working with the BBMRI-ERIC consortium to draft a proposal of a provenance information model for the biotechnology domain (ISO TC 276) and with the OpenEHR consortium for the definition of genomic data models.","post_title":"Cecilia Mascia","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"cecilia-mascia","to_ping":"","pinged":"","post_modified":"2026-04-05 20:12:23","post_modified_gmt":"2026-04-05 18:12:23","post_content_filtered":"","post_parent":0,"guid":"https:\/\/www.crs4.it\/people\/cecilia-mascia\/","menu_order":0,"post_type":"people","post_mime_type":"","comment_count":"0","filter":"raw"}]},"yoast_head":"\n |